CORNELIA DE LANGE SYNDROME AWARENESS DAY
Observed annually on the second Saturday in May, Cornelia de Lange Syndrome Awareness Day sheds light on this often misdiagnosed, little-known syndrome. This syndrome causing a range of physical, cognitive and medical challenges. It is a genetic disorder that even though present at birth, it is not always diagnosed at birth. Affecting the physical and intellectual development of a child, it is often known as Bushy Syndrome or Amsterdam dwarfism. Cornelia de Lange Syndrome (CdLS) can lead to severe developmental abnormalities affecting an estimated 1 in 10,000 to 30,000.
For more information regarding CdLS day visit the CdLS Awareness Day website.
May 9, 2015
May 14, 2016
May 13, 2017
May 12, 2018
May 11, 2019