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CORNELIA DE LANGE SYNDROME AWARENESS DAY – Second Saturday in May

Cornelia De Lange Syndrome Awareness Day - Second Saturday in May

CORNELIA DE LANGE SYNDROME AWARENESS DAY

Observed annually on the second Saturday in May, Cornelia de Lange Syndrome Awareness Day sheds light on this often misdiagnosed, little-known syndrome.  This syndrome causing a range of physical, cognitive and medical challenges.  It is a genetic disorder that even though present at birth, it is not always diagnosed at birth.  Affecting the physical and intellectual development of a child, it is often known as Bushy Syndrome or Amsterdam dwarfism. Cornelia de Lange Syndrome (CdLS) can lead to severe developmental abnormalities affecting an estimated 1 in 10,000 to 30,000.

For more information regarding CdLS day visit the CdLS Awareness Day website.

DATES
May 9, 2015
May 14, 2016
May 13, 2017
May 12, 2018
May 11, 2019

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One Response to “CORNELIA DE LANGE SYNDROME AWARENESS DAY – Second Saturday in May”

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  1. May 8th – National Have A Coke Day | One Day At A Time - May 8, 2015

    […] Cornelia De Lange Syndrome Awareness Day – Second Saturday in May […]

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